Influencer Brooke Eby has died after a four-year battle with ALS. She was 37.
“The ALS Network joins the ALS community in mourning the passing of Brooke Eby, an extraordinary advocate, storyteller, community builder and friend whose honesty, humor and determination changed how countless people understood ALS,” the ALS Network wrote in a statement shared Thursday, October 1, announcing Eby’s death. “Diagnosed with ALS at just 33 years old, Brooke made the deeply personal decision to share her experience publicly.”
The statement continued, “She did so in a way that was unmistakably her own — candid, vulnerable, funny, irreverent and remarkably human. Millions came to know Brooke through her social media presence, where she offered an unfiltered window into living with ALS. She could explain a devastating reality, challenge a misconception, and make people laugh, sometimes all in the same post.”
Eby, known as “limpbroozkit” on Instagram and TikTok, had been candid about her ALS journey. (Amyotrophic lateral sclerosis, also called Lou Gehrig’s disease, is a terminal neurodegenerative disease that causes worsening muscle weakness.)
Amid her health battle, Eby detailed her experience via social media and also founded ALStogether to bring together individuals navigating their diagnoses.
“Generally speaking, it’s quite hard to know how fast I’ve progressed. There’s really no guide with ALS,” she recalled to People in a 2025 essay. “If you were to look at 10 people with this disease in a line, I swear you wouldn’t be able to tell whose progression is the fastest and whose is the slowest. There are people who have full function in terms of walking, but ALS already took their voice, whereas for me, it’s the opposite.”
Eby was diagnosed in March 2022 after first experiencing symptoms years earlier at age 29.
“They brought up ALS about two years into that four-year journey [trying to find a diagnosis],” she noted in a 2024 social media video. “Because that was only affecting one of my limbs at that point, my left foot, it wasn’t enough for them to be able to give an ALS diagnosis or even be certain that it was ALS.”
Eby eventually began experiencing symptoms on her other foot, and doctors confirmed that she had ALS.
“When you get diagnosed, they tell you [that] you have two to four years to live, probably,” she acknowledged. “There’s a couple medications that might slow things down, but they’re not totally sure, and there’s no cure. … That day sucked, and so did the following couple months.”
Months before her death, Eby received the Dean and Kathleen Rasmussen Advocate of the Year Award from the ALS Network.
“I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon,” she said in a June acceptance speech. “I’m so grateful for this award because it tells me I’m helping in my own weird way.”
